Name:
Benefits and challenges of assessing real-world genomics data with Bogi Eliasen
Description:
Benefits and challenges of assessing real-world genomics data with Bogi Eliasen
Thumbnail URL:
https://cadmoremediastorage.blob.core.windows.net/b432e8a1-2513-41b0-a2ad-7c1b1854d555/videoscrubberimages/Scrubber_15.jpg
Duration:
T00H05M31S
Embed URL:
https://stream.cadmore.media/player/b432e8a1-2513-41b0-a2ad-7c1b1854d555
Content URL:
https://asa1cadmoremedia.blob.core.windows.net/asset-0e898af4-d0ad-4e1c-810a-acd570eac90f/Bogi Eliasen- Interview V3.mp4
Upload Date:
2020-04-21T00:00:00.0000000
Transcript:
Language: EN.
Segment:1 Benefits and challenges of assessing real-world genomics data with Bogi Eliasen.
[MUSIC PLAYING]
Segment:2 Please could you introduce yourself, and briefly summarize your main roles & responsibilities in your current position?.
Bogi Eliasen: My name is Bogi Eliasen. I work with the Copenhagen Institute for Future Studies. I am mainly responsible for health. What we do is to bridge digital health and genomics, and we work on a Danish-Nordic-European global level with that.
Segment:3 Your involvement with genomics and data-driven healthcare began with the FarGen project. What was your role in the project?.
Bogi Eliasen: [MUSIC PLAYING] My role in the FarGen Project was a co-initiator of this era. It was an era where the genomics began.
Bogi Eliasen: We also saw evidence in the other Nordic and European countries. My specific approach to this was more on the societal value than on the sequencing itself. And that's what we have pushed forward. And that's what we tried with having this as the first attempt to think, what does it mean to make a population genomic project?
Segment:4 What are the wider implications of this project from a global healthcare perspective?.
Bogi Eliasen: [MUSIC PLAYING] So the wider implication of that project is that we set the frame on population genomics, how to work with it and put it from research into clinic, and more on societal impact and societal use.
Bogi Eliasen: And I think we have been a part of framing on how that has been articulated further on.
Segment:5 Your group recently published a White Paper on ‘Person Centric Data Management Models and Opportunities in the Healthcare Sector - the Nordic Way’. Why was this paper published?.
Bogi Eliasen: [MUSIC PLAYING]
Bogi Eliasen: So our White Paper was a collaboration with the Oulu University complex in Finland. And we saw a need to work with what does this mean, so the convergence part, but also to work on ecosystems. And we already agreed on from the start of this project that this is not something that a region or a country does alone, but rather a group of countries.
Bogi Eliasen: And our thinking in this has been that it's very good to start this in the Nordics, and then it might go as a European projects later on.
Segment:6 In your opinion, what would be the ideal person centric data management model? Could this be achievable with current technologies?.
Bogi Eliasen: [MUSIC PLAYING] We have a technology today that can do much more than we do. So we need to think about not just innovation. We also need to step away from just thinking about producing new data and have a focus on what we actually can do.
Bogi Eliasen: We have in the spring of 2019 worked with a large group of Nordic decision makers where we have worked on different ways of going forward together. So we have identified five Nordic core values. We have identified the 5-5 vision on working on the long term with change in the way we work to have half of the focus on primary, secondary, and tertiary prevention.
Bogi Eliasen: And we are also focusing on how the Nordics could be a part of framing this landscape in the future. So in the Nordics, we can do a lot of things because the countries are connected and very digitized. And there is a trust in the system, but this needs to be a European and a global effort on long term. So the change we need right now is to think about what do we actually want to do with persons, so that's the value outcome.
Bogi Eliasen: And the value outcome is not necessarily just that you get a good treatment, but you actually have an improved quality of life long term. And quite shortly, do we have technology to realize a lot of these things? Yes, we do.
Segment:7 The recently launched FutureProofing Healthcare Sustainability Index identifies areas of improvement for the future of healthcare. Can you tell us more about this index?.
Bogi Eliasen: [MUSIC PLAYING] The idea with the index is to try to figure out, how can we get data, usable data, understandable data, to the necessary decision makers and the wider public so you understand what is really the challenge of health?
Bogi Eliasen: It's very, very hard to get access to data today if you don't work with it on a daily basis. And we can see that most health decisions in the political system is based on feelings. It's not based on what what's actually happening. So you could say this is a move from feel good to do good. And we also take this data and try to compare different data sources so we can identify best practices.
Bogi Eliasen: So we also identify mutual self-interests. So we get different countries, parties, stakeholders to work together based on a common understanding of things. And lastly but not least, it's also the idea to create a platform where you can have discussions going forward using evidence, using data to go forward with this. And the next step, which will be launched probably in the mid-2020, is to have an index on personalized health.
Segment:8 What do you hope the insights from the Index will show? .
Bogi Eliasen: [MUSIC PLAYING] So it's not so much about what the index will show, but what it can create so we can move forward. And it moves the discussion to what really matters, what works, what doesn't work, and how can we create things together.
Segment:9 In your opinion, what does the future of sustainable healthcare look like? .
Bogi Eliasen: [MUSIC PLAYING] The future of sustainable health care is that we, from several approaches, go in and look at what is it that we really need to work with.
Bogi Eliasen: And what we really need to work with is the disease burden. So if we can stop the increasing of the disease burden and maybe decrease the disease burden at the same time as we improve the quality of life, and we have a cost level of the health system that's acceptable-- I'm not saying it should be lower or higher. I'm just saying acceptable to the current to the situation-- then I think that's good. [MUSIC PLAYING]
